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Idea#158

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CKD »

Disease self-management and health care transitiion

To improve the health outcomes of adolescents and emerging adults with CKD/ESKD as they transfer to adult-focused providers, a successful health care transition (HCT) process needs to take place. This preparation from parent-directed care to disease self management should be planned and monitored longitudinally. Tools to measure and monitor the HCT process need to be developed and validated.

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Submitted by 4 years ago

Comments (5)

  1. Maria Ferris Idea Submitter

    This idea could also include treatment adherence and patient education curriculums

    4 years ago
  2. As someone who ended up having two kidney rejection episodes due to never getting the opportunity of going through a transition program, I can attest to the vast importance and need for transition programs across the country and for various chronic conditions.

    3 years ago
  3. The adolescent group of patients are usually non compliant and a cross talk with pediatric nephrologist and adult is very important. Educating the adult nephrologist of the these topics is essential as well.

    3 years ago
  4. The planned process of health care transition is absolutely critical for emerging adults with chronic health conditions. Unless these young people master management of their health, it is unlikely they will succeed in other life areas. Developing tools that can be used by all emerging adults with CMCD will help physicians who are do not practice in transition centers to embark on the transition process.

    3 years ago
  5. I think transition research and care planning is intensely important through all of medicine, but this is particularly acute for chronic diseases whose course is "managed" like CKD. I fully support this as a primary research focus of the NIDDK.

    3 years ago

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